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A multi-language qualitative study of limited English proficiency patient experiences in the United States

Squires, Allison; Gerchow, Lauren; Ma, Chenjuan; Liang, Eva; Trachtenberg, Melissa; Miner, Sarah
Objective: The purpose of this study was to understand the limited English proficiency patient experience with health care services in an urban setting in the United States. Methods: Through a narrative analysis approach, 71 individuals who spoke either Spanish, Russian, Cantonese, Mandarin, or Korean shared their experiences through semi-structured interviews between 2016 and 2018. Analyses used monolingual and multilingual open coding approaches to generate themes. Results: Six themes illustrated patient experiences and identified sources of structural inequities perpetuating language barriers at the point of care. An important thread throughout all interviews was the sense that the language barrier with clinicians posed a threat to their safety when receiving healthcare, citing an acute awareness of additional risk for harm they might experience. Participants also consistently identified factors they felt would improve their sense of security that were specific to clinician interactions. Differences in experiences were specific to culture and heritage. Conclusions: The findings highlight the ongoing challenges spoken language barriers pose across multiple points of care in the United States' health care system. Innovation: The multi-language nature of this study and its methodological insights are innovative as most studies have focused on clinicians or patient experiences in a single language.
SCOPUS:85163774732
ISSN: 2772-6282
CID: 5548152

Making the invisible visible: The importance of applying a lens of Intersectionality for researching Internationally Educated Nurses

Thompson, Roy A; Lewis, Kaleea R; Curtis, Cedonnie A; Olanrewaju, Sherif A; Squires, Allison
PMID: 37984020
ISSN: 1528-3968
CID: 5608262

Language Access for Families With Limited English Proficiency: Why Does It Matter?

Bennett, Sheryl; Squires, Allison P; McCabe, Ellen
This manuscript guides school nurses in addressing the unique needs of U.S. school-aged students and families with limited English proficiency (LEP). Owing to the increasing ethnic and racial diversity in U.S. K-12 schools, school nurses will likely encounter children and families with LEP. Students with LEP may be part of a family which immigrated to this country as permanent residents, are refugees, or asylum seekers. Some may be from migrant families who move throughout the region or country for work. School health services, including nursing services, may be the first and only health resource to which these children have consistent access. The availability and importance of language access services are highlighted, as well as tips for school nurses to advocate for language access resources, training for effective communication, understanding the legal landscape, and addressing cultural beliefs that influence health behaviors. Advocacy toward identifying the distinctive needs of families with LEP aims to help school nurses target equitable health outcomes.
PMID: 37515454
ISSN: 1942-6038
CID: 5617822

Continuity of Care Versus Language Concordance as an Intervention to Reduce Hospital Readmissions From Home Health Care

Squires, Allison; Engel, Patrick; Ma, Chenjuan; Miner, Sarah M; Feldman, Penny H; McDonald, Margaret V; Jones, Simon A
BACKGROUND:Language concordance between health care practitioners and patients have recently been shown to lower the risk of adverse health events. Continuity of care also been shown to have the same impact. OBJECTIVE:The purpose of this paper is to examine the relative effectiveness of both continuity of care and language concordance as alternative or complementary interventions to improve health outcomes of people with limited English proficiency. DESIGN:A multivariable logistic regression model using rehospitalization as the dependent variable was built. The variable of interest was created to compare language concordance and continuity of care. PARTICIPANTS:The final sample included 22,103 patients from the New York City area between 2010 and 2015 who were non-English-speaking and admitted to their home health site following hospital discharge. MEASURES:The odds ratio (OR) average marginal effect (AME) of each included variable was calculated for model analysis. RESULTS:When compared with low continuity of care and high language concordance, high continuity of care and high language concordance significantly decreased readmissions (OR=0.71, 95% CI: 0.62-0.80, P<0.001, AME=-4.95%), along with high continuity of care and low language concordance (OR=0.80, 95% CI: 0.74-0.86, P<0.001, AME=-3.26%). Low continuity of care and high language concordance did not significantly impact readmissions (OR=1.04, 95% CI: 0.86-1.26, P=0.672, AME=0.64%). CONCLUSION:In the US home health system, enhancing continuity of care for those with language barriers may be helpful to address disparities and reduce hospital readmission rates.
PMCID:10421624
PMID: 37561604
ISSN: 1537-1948
CID: 5595402

Improving care for older people: A special issue [Editorial]

Zisberg, Anna; Lickiewicz, Jakub; Squires, Allison
PMID: 36931177
ISSN: 1873-491x
CID: 5495552

How nurses' job characteristics affect their self-assessed work environment in hospitals- Slovenian use of the practice environment scale of the nursing work index

Skela-Savič, Brigita; Sermeus, Walter; Dello, Simon; Squires, Allison; Bahun, Mateja; Lobe, Bojana
BACKGROUND:Nurses' work environment influences nursing practice. Inappropriate working conditions are the result of underdeveloped workplace infrastructure, poor work organisation, inadequate education, and inappropriate staffing norms. The aim of this study was to describe and examine the predictors that affect nurses' work environment using the Practice Environment Scale of the Nursing Work Index (PES-NWI). METHODS:The validation of the PES-NWI was made. Nurse-reported job characteristics were used as independent variables. The sample included 1,010 nurses from adult surgical and medical units at 10 Slovenian hospitals. The Nurse Forecasting (RN4CAST) protocol was used. Permission to conduct the study was obtained from the National Medical Ethics Committee. RESULTS:The PES-NWI mean (2.64) was low, as were job and career satisfaction at 2.96 and 2.89, respectively. The PES-NWI can be explained in 48% with 'Opportunities for advancement', 'Educational opportunities', 'Satisfaction with current job', 'Professional status', 'Study leave', and 'Level of education'. A three-factor solution of PES-NWI yielded eight distinct variables. CONCLUSIONS:The obtained average on the Nursing Work Index was one of the lowest among previously conducted surveys. Nurses should be recognized as equals in the healthcare workforce who need to be empowered to develop the profession and have career development opportunities. Inter-professional relations and equal involvement of nurses in hospital affairs are also very important. TRIAL REGISTRATION/BACKGROUND:This is a non-intervention study - retrospectively registered.
PMCID:10077322
PMID: 37024874
ISSN: 1472-6955
CID: 5496392

Freedom is not free: Examining health equity for racial and ethnic minoritized veterans [Editorial]

Riser, Tiffany J; Thompson, Roy A; Curtis, Cedonnie; Squires, Allison; Mowinski-Jennings, Bonnie; Szanton, Sarah L
PMID: 36929135
ISSN: 1098-240x
CID: 5449022

The power of the language we use: Stigmatization of individuals and fellow nurses with substance use issues [Editorial]

Foli, Karen J; Choflet, Amanda; Matthias-Anderson, Deborah; Mercer, Maile; Thompson, Roy A; Squires, Allison
PMID: 36571705
ISSN: 1098-240x
CID: 5409512

Awareness of Disease Status Among Patients With Cancer: An Integrative Review

Finlayson, Catherine S; Rosa, William E; Mathew, Shiyon; Applebaum, Allison; Squires, Allison; Fu, Mei R
BACKGROUND:As the quality of cancer care improves, oncology patients face a rapidly increasing number of treatment options. Thus, it is vital that they are full and active partners in the treatment decision-making process. Awareness of disease status has been investigated in the literature; it has been inconsistently conceptualized and operationalized. OBJECTIVE:The aim of this integrative review was to develop a conceptual definition and model of the awareness of disease status among patients with cancer. METHODS:Whittemore and Knafl's integrative review methodology guided this article. We obtained data through a systematic search of 8 databases. Key terms utilized were awareness, perception, truth disclosure, diagnosis, prognosis, terminal illness, status, neoplasm, and metastasis. Dates through January 2020 were searched to capture all relevant articles. Sixty-nine articles met inclusion criteria. RESULTS:The integrative review methodology guided the development of a conceptual definition and model. The concept of "awareness of disease status" was defined as the individual patient's understanding of being diagnosed and treated for cancer based on the multifactorial components of individual patient characteristics and contextually driven communication practices of healthcare providers. This understanding is dynamic and changes throughout the disease trajectory. CONCLUSION/CONCLUSIONS:These findings will inform consistency in the literature. Such consistency may improve person-centered clinical communication, care planning practices, and, ultimately, cancer-related outcomes. IMPLICATIONS FOR PRACTICE/CONCLUSIONS:With a greater understanding of the complexity of patients' awareness of disease status, nurses will be able to guide their patients to make informed decisions throughout their disease trajectory.
PMID: 36728162
ISSN: 1538-9804
CID: 5435332

Community perspectives on cardiovascular disease control in rural Ghana: A qualitative study

Patil, Bhavana; Hutchinson Maddox, Isla; Aborigo, Raymond; Squires, Allison P; Awuni, Denis; Horowitz, Carol R; Oduro, Abraham R; Phillips, James F; Jones, Khadija R; Heller, David J
BACKGROUND:Cardiovascular disease (CVD) prevalence is high in Ghana-but awareness, prevention, and treatment is sparse, particularly in rural regions. The nurse-led Community-based Health Planning and Services program offers general preventive and primary care in these areas, but overlooks CVD and its risk factors. METHODS:We conducted in-depth interviews with 30 community members (CM) in rural Navrongo, Ghana to understand their knowledge and beliefs regarding the causes and treatment of CVD and the potential role of community nurses in rendering CVD care. We transcribed audio records, coded these data for content, and qualitatively analyzed these codes for key themes. RESULTS:CMs described CVD as an acute, aggressive disease rather than a chronic asymptomatic condition, believing that CVD patients often die suddenly. Yet CMs identified causal risk factors for CVD: not only tobacco smoking and poor diet, but also emotional burdens and stressors, which cause and exacerbate CVD symptoms. Many CMs expressed interest in counseling on these risk factors, particularly diet. However, they felt that nurses could provide comprehensive CVD care only if key barriers (such as medication access and training) are addressed. In the interim, many saw nurses' main CVD care role as referring to the hospital. CONCLUSIONS:CMs would like CVD behavioral education from community nurses at local clinics, but feel the local health system is now too fragile to offer other CVD interventions. CMs believe that a more comprehensive CVD care model would require accessible medication, along with training for nurses to screen for hypertension and other cardiovascular risk factors-in addition to counseling on CVD prevention. Such counseling should build upon existing community beliefs and concerns regarding CVD-including its behavioral and mental health causes-in addition to usual measures to prevent CVD mortality such as diet changes and physical exercise.
PMCID:9858357
PMID: 36662744
ISSN: 1932-6203
CID: 5410782