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The ethics of physicians' web searches for patients' information
Genes, Nicholas; Appel, Jacob
When physicians search the web for personal information about their patients, others have argued that this undermines patients' trust, and the physician-patient relationship in general. We add that this practice also places other relationships at risk, and could jeopardize a physician's career. Yet there are also reports of web searches that have unambiguously helped in the care of patients, suggesting circumstances in which a routine search of the web could be beneficial. We advance the notion that, just as nonverbal cues and unsolicited information can be useful in clinical decision making, so too can online information from patients. As electronic records grow more voluminous and span more types of data, searching these resources will become a clinical skill, to be used judiciously and with care--just as evaluating the literature is, today. But to proscribe web searches of patients' information altogether is as nonsensical as disregarding findings from physical exams-instead, what's needed are guidelines for when to look and how to evaluate what's uncovered, online.
PMID: 25794296
ISSN: 1046-7890
CID: 4966352
Analysis of twitter users' sharing of official new york storm response messages
Genes, Nicholas; Chary, Michael; Chason, Kevin
BACKGROUND:Twitter is a social network where users read, send, and share snippets of text ("tweets"). Tweets can be disseminated through multiple means; on desktop computers, laptops, and mobile devices, over ethernet, Wi-Fi or cellular networks. This redundancy positions Twitter as a useful tool for disseminating information to the public during emergencies or disasters. Previous research on dissemination of information using Twitter has mostly investigated the characteristics of tweets that are most effective in raising consumer awareness about a new product or event. In particular, they describe characteristics that increase the chance the messages will be shared ("retweeted") by users. In comparison, little has been published on how information from municipal or state government agencies spreads on Twitter during emergency situations. Retweeting these messages is a way to enhance public awareness of potentially important instructions from public officials in a disaster. OBJECTIVE:The aim of this study is to (1) describe the tweets of select New York State and New York City agencies by public officials surrounding two notable recent winter storms that required a large-scale emergency response, and (2) identify the characteristics of the tweets of public officials that were most disseminated (retweeted). METHODS:For one week surrounding Superstorm Sandy (October 2012) and the winter blizzard Nemo (February 2013), we collected (1) tweets from the official accounts for six New York governmental agencies, and (2) all tweets containing the hashtags #sandy (or #nemo) and #nyc. From these data we calculated how many times a tweet was retweeted, controlling for differences in baseline activity in each account. We observed how many hashtags and links each tweet contained. We also calculated the lexical diversity of each tweet, a measure of the range of vocabulary used. RESULTS:During the Sandy storm, 3242 shared (retweeted) messages from public officials were collected. The lexical diversity of official tweets was similar (2.25-2.49) and well below the average for non-official tweets mentioning #sandy and #nyc (3.82). Most official tweets were with substantial retweets including a link for further reading. Of the 448 tweets analyzed from six official city and state Twitter accounts from the Nemo blizzard, 271 were related to the storm, and 174 had actionable information for the public. Actionable storm messages were retweeted approximately 24x per message, compared to 31x per message for general storm information. CONCLUSIONS:During two weather emergencies, New York public officials were able to convey storm-related information that was shared widely beyond existing follower bases, potentially improving situational awareness and disaster response. Official Sandy tweets, characterized by a lower lexical diversity score than other city- and Sandy-related tweets, were likely easier to understand, and often linked to further information and resources. Actionable information in the Nemo blizzard, such as specific instructions and cancellation notices, was not shared as often as more general warnings and "fun facts," suggesting agencies mix important instructions with more general news and trivia, as a way of reaching the broadest audience during a disaster.
PMCID:4084767
PMID: 25075245
ISSN: 1923-2195
CID: 4966332
Enhancing a geriatric emergency department care coordination intervention using automated health information exchange-based clinical event notifications
Gutteridge, David L; Genes, Nicholas; Hwang, Ula; Kaplan, Benjamin; Shapiro, Jason S
PURPOSE: In a health care system where patients often have numerous providers and multiple chronic medical conditions, interoperability of health information technology (HIT) is of paramount importance. Regional health information organizations (RHIO) often provide a health information exchange (HIE) as a solution, which gives stakeholders access to clinical data that they otherwise would not otherwise have. A secondary use of preexisting HIE infrastructure is clinical event notification (CEN) services, which send automated notifications to stakeholders. This paper describes the development and implementation of a CEN service enabled by a RHIO in the New York metropolitan area to improve care coordination for patients enrolled in a geriatric emergency department care coordination program. INNOVATION: This operational CEN system incorporates several innovations that to our knowledge have not been implemented previously. They include the near real-time notifications and the delivery of notifications via multiple pathways: electronic health record (EHR) "in-baskets," email, text message to internet protocol-based "zone" phones, and automated encounter entry into the EHR. Based on these alerts the geriatric care coordination team contacts the facility where the patient is being seen and offers additional information or assistance with disposition planning with the goal of decreasing potentially avoidable admissions and duplicate testing. FINDINGS: During the nearly one-year study period, the CEN program enrolled 5722 patients and sent 497 unique notifications regarding 206 patients. Of these notifications, 219 (44%) were for emergency department (ED) visits; 121 (55%) of those notifications were received during normal business hours when the care coordination team was available to contact the ED where the patient was receiving care. Hospital admissions resulted from 45% of ED visits 17.8% of these admissions lasted 48 hours or less, suggesting some might potentially be avoidable. CONCLUSIONS AND DISCUSSION: This study demonstrates the potential of CEN systems to improve care coordination by notifying providers of the occurrence of specific events. Although it could not directly be demonstrated here, we believe that widespread use of CEN systems have potential to reduce potentially avoidable admissions and duplicate testing, likely leading to decreased costs.
PMCID:4371432
PMID: 25848622
ISSN: 2327-9214
CID: 2118192
Signs & symptoms of Dextromethorphan exposure from YouTube
Chary, Michael; Park, Emily H; McKenzie, Andrew; Sun, Julia; Manini, Alex F; Genes, Nicholas
Detailed data on the recreational use of drugs are difficult to obtain through traditional means, especially for substances like Dextromethorphan (DXM) which are available over-the-counter for medicinal purposes. In this study, we show that information provided by commenters on YouTube is useful for uncovering the toxicologic effects of DXM. Using methods of computational linguistics, we were able to recreate many of the clinically described signs and symptoms of DXM ingestion at various doses, using information extracted from YouTube comments. Our study shows how social networks can enhance our understanding of recreational drug effects.
PMCID:3922701
PMID: 24533044
ISSN: 1932-6203
CID: 4966322
Validating Health Information Exchange (HIE) Data For Quality Measurement Across Four Hospitals
Garg, Nupur; Kuperman, Gil; Onyile, Arit; Lowry, Tina; Genes, Nicholas; DiMaggio, Charles; Richardson, Lynne; Husk, Gregg; Shapiro, Jason S
Health information exchange (HIE) provides an essential enhancement to electronic health records (EHR), allowing information to follow patients across provider organizations. There is also an opportunity to improve public health surveillance, quality measurement, and research through secondary use of HIE data, but data quality presents potential barriers. Our objective was to validate the secondary use of HIE data for two emergency department (ED) quality measures: identification of frequent ED users and early (72-hour) ED returns. We compared concordance of various demographic and encounter data from an HIE for four hospitals to data provided by the hospitals from their EHRs over a two year period, and then compared measurement of our two quality measures using both HIE and EHR data. We found that, following data cleaning, there was no significant difference in the total counts for frequent ED users or early ED returns for any of the four hospitals (p<0.001).
PMCID:4419935
PMID: 25954362
ISSN: 1942-597x
CID: 1601502
Quality and safety implications of emergency department information systems
Farley, Heather L; Baumlin, Kevin M; Hamedani, Azita G; Cheung, Dickson S; Edwards, Michael R; Fuller, Drew C; Genes, Nicholas; Griffey, Richard T; Kelly, John J; McClay, James C; Nielson, Jeff; Phelan, Michael P; Shapiro, Jason S; Stone-Griffith, Suzanne; Pines, Jesse M
The Health Information Technology for Economic and Clinical Health Act of 2009 and the Centers for Medicare & Medicaid Services "meaningful use" incentive programs, in tandem with the boundless additional requirements for detailed reporting of quality metrics, have galvanized hospital efforts to implement hospital-based electronic health records. As such, emergency department information systems (EDISs) are an important and unique component of most hospitals' electronic health records. System functionality varies greatly and affects physician decisionmaking, clinician workflow, communication, and, ultimately, the overall quality of care and patient safety. This article is a joint effort by members of the Quality Improvement and Patient Safety Section and the Informatics Section of the American College of Emergency Physicians. The aim of this effort is to examine the benefits and potential threats to quality and patient safety that could result from the choice of a particular EDIS, its implementation and optimization, and the hospital's or physician group's approach to continuous improvement of the EDIS. Specifically, we explored the following areas of potential EDIS safety concerns: communication failure, wrong order-wrong patient errors, poor data display, and alert fatigue. Case studies are presented that illustrate the potential harm that could befall patients from an inferior EDIS product or suboptimal execution of such a product in the clinical environment. The authors have developed 7 recommendations to improve patient safety with respect to the deployment of EDISs. These include ensuring that emergency providers actively participate in selection of the EDIS product, in the design of processes related to EDIS implementation and optimization, and in the monitoring of the system's ongoing success or failure. Our recommendations apply to emergency departments using any type of EDIS: custom-developed systems, best-of-breed vendor systems, or enterprise systems.
PMCID:3880777
PMID: 23796627
ISSN: 1097-6760
CID: 4966292
Ethics of data sequestration in electronic health records
Genes, Nicholas; Appel, Jacob
PMID: 23916368
ISSN: 1469-2147
CID: 4966302
Leveraging social networks for toxicovigilance
Chary, Michael; Genes, Nicholas; McKenzie, Andrew; Manini, Alex F
The landscape of drug abuse is shifting. Traditional means of characterizing these changes, such as national surveys or voluntary reporting by frontline clinicians, can miss changes in usage the emergence of novel drugs. Delays in detecting novel drug usage patterns make it difficult to evaluate public policy aimed at altering drug abuse. Increasingly, newer methods to inform frontline providers to recognize symptoms associated with novel drugs or methods of administration are needed. The growth of social networks may address this need. The objective of this manuscript is to introduce tools for using data from social networks to characterize drug abuse. We outline a structured approach to analyze social media in order to capture emerging trends in drug abuse by applying powerful methods from artificial intelligence, computational linguistics, graph theory, and agent-based modeling. First, we describe how to obtain data from social networks such as Twitter using publicly available automated programmatic interfaces. Then, we discuss how to use artificial intelligence techniques to extract content useful for purposes of toxicovigilance. This filtered content can be employed to generate real-time maps of drug usage across geographical regions. Beyond describing the real-time epidemiology of drug abuse, techniques from computational linguistics can uncover ways that drug discussions differ from other online conversations. Next, graph theory can elucidate the structure of networks discussing drug abuse, helping us learn what online interactions promote drug abuse and whether these interactions differ among drugs. Finally, agent-based modeling relates online interactions to psychological archetypes, providing a link between epidemiology and behavior. An analysis of social media discussions about drug abuse patterns with computational linguistics, graph theory, and agent-based modeling permits the real-time monitoring and characterization of trends of drugs of abuse. These tools provide a powerful complement to existing methods of toxicovigilance.
PMCID:3657021
PMID: 23619711
ISSN: 1937-6995
CID: 4966282
An academic medical center's response to widespread computer failure
Genes, Nicholas; Chary, Michael; Chason, Kevin W
As hospitals incorporate information technology (IT), their operations become increasingly vulnerable to technological breakdowns and attacks. Proper emergency management and business continuity planning require an approach to identify, mitigate, and work through IT downtime. Hospitals can prepare for these disasters by reviewing case studies. This case study details the disruption of computer operations at Mount Sinai Medical Center (MSMC), an urban academic teaching hospital. The events, and MSMC's response, are narrated and the impact on hospital operations is analyzed. MSMC's disaster management strategy prevented computer failure from compromising patient care, although walkouts and time-to-disposition in the emergency department (ED) notably increased. This incident highlights the importance of disaster preparedness and mitigation. It also demonstrates the value of using operational data to evaluate hospital responses to disasters. Quantifying normal hospital functions, just as with a patient's vital signs, may help quantitatively evaluate and improve disaster management and business continuity planning.
PMID: 24352930
ISSN: 1932-149x
CID: 4966312
An unusual presentation of twiddler's syndrome [Case Report]
Close, Mieka D; Genes, Nicholas
PMID: 20851557
ISSN: 0736-4679
CID: 4966212