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The US Network of Pediatric Multiple Sclerosis Centers: Development, Progress, and Next Steps
Casper, T Charles; Rose, John W; Roalstad, Shelly; Waubant, Emmanuelle; Aaen, Gregory; Belman, Anita; Chitnis, Tanuja; Gorman, Mark; Krupp, Lauren; Lotze, Timothy E; Ness, Jayne; Patterson, Marc; Rodriguez, Moses; Weinstock-Guttman, Bianca; Browning, Brittan; Graves, Jennifer; Tillema, Jan-Mendelt; Benson, Leslie; Harris, Yolanda
Multiple sclerosis and other demyelinating diseases in the pediatric population have received an increasing level of attention by clinicians and researchers. The low incidence of these diseases in children creates a need for the involvement of multiple clinical centers in research efforts. The Network of Pediatric Multiple Sclerosis Centers was created initially in 2006 to improve the diagnosis and care of children with demyelinating diseases. In 2010, the Network shifted its focus to multicenter research while continuing to advance the care of patients. The Network has obtained support from the National Multiple Sclerosis Society, the Guthy-Jackson Charitable Foundation, and the National Institutes of Health. The Network will continue to serve as a platform for conducting impactful research in pediatric demyelinating diseases of the central nervous system. This article provides a description of the history and development, organization, mission, research priorities, current studies, and future plans of the Network.
PMCID:4379142
PMID: 25270659
ISSN: 1708-8283
CID: 2153542
The geographic distribution of pediatric MS in the US [Meeting Abstract]
Lavery, AM; Waldman, AT; Roalstad, S; Ness, J; Gorman, M; Benson, L; Weinstock-Guttman, B; Rubin, J; Schreiner, T; Aaen, G; Tillema, JMendelt; Rodriguez, M; Chitnis, T; Candee, M; Krupp, L; Belman, A; Lotze, T; Graves, J; Graves, B; Mar, S; Casper, C; Rose, J; Simmons, T; Waubant, E
ISI:000365729402284
ISSN: 1477-0970
CID: 2234352
Fat, fiber and pediatric MS [Meeting Abstract]
Seminatore, B; Graves, J; Waldman, Amy; Lotze, T; Schreiner, T; Belman, Anita; Greenberg, B; Weinstock-Guttman, B; Aaen, G; Mendelt-Tilleman, J; Hart, J; Ness, J; Rubin, J; Krupp, Lauren; Gorman, M; Benson, L; Rodriguez, M; Chitnis, T; Mar, S; Barcellos, L; Rose, J; Roalstad, S; Simmons, T; Casper, C; Waubant, E
ORIGINAL:0011421
ISSN: 1526-632x
CID: 2236642
A case-control study of dietary salt intake and risk of pediatric multiple sclerosis (MS) [Meeting Abstract]
McDonald, Jamie; Graves, Jennifer; Waldman, Amy; Lotze, Timothy; Schreiner, Teri; Belman, Anita; Greenberg, Benjamin; Weinstock-Guttman, Bianca; Aaen, Gregory; Tillema, Jan-Mendelt; Hart, Janance; Ness, Jayne; Rubin, Jennifer; Krupp, Lauren; Gorman, Mark; Benson, Leslie; Rodrigeuz, Moses; Chitnis, Tanuja; Mar, Soe; Barcellos, Lisa; Rose, John; Roalstad, Shelly; Simmons, Timothy; Casper, Charles; Waubant, Emmanuelle
ORIGINAL:0011416
ISSN: 1526-632x
CID: 2236592
Effect of obesity and puberty on risk and age at onset of pediatric MS [Meeting Abstract]
Chitnis, T; Graves, J; Weinstock-Guttman, B; Belman, A; Misra, M; Olsen, CS; Aaen, G; Benson, L; Candee, M; Gorman, M; Greenberg, B; Lotze, T; Ness, J; Rodriguez, M; Rose, J; Rubin, J; Schreiner, T; Mendelt-Tillema, J; Casper, TC; Waubant, E; US Network Pediat MS Ctr
ISI:000365729400152
ISSN: 1477-0970
CID: 2236802
Cognitive impairment is associated with behavioral problems in pediatric multiple sclerosis (MS) [Meeting Abstract]
Cersosimo, B; Schwarz, C; Gupta, N; Amadiume, N; Belman, Anita; Krupp, Lauren; Charvet, Leigh E
ORIGINAL:0011419
ISSN: 1526-632x
CID: 2236622
Gut microbiome in early pediatric MS : a case-control study [Meeting Abstract]
Tremlett, H; Fadrosh, D; Lynch, S; Hart, J; Graves, J; Lulu, S; Aaen, G; Belman, Anita; Benson, L; Casper, C; Chitnis, T; Gorman, M; Krupp, Lauren; Lotze, T; Ness, J; Roalstad, S; Rodriguez, M; Rose, J; Mendelt-Tilleman, J; Weinstock-Guttman, B; Waubant, E
ORIGINAL:0011420
ISSN: 1526-632x
CID: 2236632
Pregnancy exposures and risk for paediatric onset MS [Meeting Abstract]
Graves, JS; Chitnis, T; Guttman, BWeinstock; Rubin, J; Nourbakhsh, B; Zeilkovitch, A; Simmons, T; Krupp, L; Belman, A; Ness, J; Mendelt-Tillema, J; Rodriguez, M; Gorman, M; Benson, L; Waldman, A; Aaen, G; Greenberg, B; Schreiner, T; Rose, J; Casper, TC; Waubant, E
ISI:000365729402283
ISSN: 1477-0970
CID: 2234182
Acquisition of early developmental milestones and need for special education services in paediatric-onset multiple sclerosis [Meeting Abstract]
Aaen, GS; Waltz, M; Casper, T; Ness, J; Gorman, M; Makhani, N; Vargas, W; Waubant, E; Chitnis, T; Lotze, T; Graves, J; Benson, L; Tillema, J-M; Rodriguez, M; Rose, J; Weinstock-Guttman, B; Krupp, L; Belman, A; US Network Paediat Multiple
ISI:000365729400145
ISSN: 1477-0970
CID: 2234332
Association of dietary salt intake and relapse rate in pediatric multiple sclerosis [Meeting Abstract]
Nourbakhsh, B; Graves, J; Lulu, S; Waldman, A; Belman, A; Greenberg, B; Weinstock-Guttman, B; Aaen, G; Tillema, J-M; Hart, J; Lee, M; Ness, J; Rubin, J; Krupp, L; Gorman, M; Benson, L; Rodriguez, M; Chitnis, T; Simmons, T; Casper, C; Rose, J; Barcellos, L; Waubant, E
ISI:000365729400155
ISSN: 1477-0970
CID: 2234342
