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Associations between Spiritual Health Locus of Control, Perceived Discrimination and Breast and Cervical Cancer Screening for Muslim American Women in New York City
Azhar, Sameena; Wyatt, Laura C; Jokhakar, Vaidehi; Patel, Shilpa; Raveis, Victoria H; Kwon, Simona C; Islam, Nadia S
BACKGROUND:We sought to understand the impacts of religion-related factors, namely perceived discrimination and spiritual health locus of control, on breast and cervical cancer screening for Muslim American women. METHODS:A total of 421 Muslim American women were surveyed at baseline of a breast and cervical cancer screening intervention, measuring discrimination through the Perceived Ethnic Discrimination Questionnaire (PED-Q), a 17-item scale measuring perceived interpersonal racial/ethnic discrimination; and spiritual beliefs through the Spiritual Health Locus of Control Scale, a 13-item scale measuring the link between control over one's health with a connection to religious beliefs. Multivariable logistic regression models were used to determine factors associated with an up-to-date mammogram and Pap test. RESULTS:Most women preferred to receive medical care from a healthcare provider of their same gender (75.2%) and same race, ethnicity or religion (62.1%). The middle age group (50-59) and a lower God's Grace Spiritual Health Locus of Control subscale were associated with up-to-date mammogram. Younger age, lower education, higher Exclusion/Rejection subscale, and lower Spiritual Life/Faith Subscale were associated with an up-to-date Pap test. CONCLUSION/CONCLUSIONS:The spiritual beliefs of Muslim American women impact their likelihood of obtaining breast and cervical cancer screenings. Therefore, these services need to be better tailored to match these needs, for example, by ensuring that Muslim American women have access to healthcare providers of their same gender, race, ethnicity or religion.
PMID: 35078722
ISSN: 1938-0666
CID: 5147532
Knowledge, Attitudes, and Cultural Beliefs about Healthy Aging and Alzheimer's Disease among Older Chinese Americans in New York City
Robbins, Rebecca; Chong, Stella; Liang, Alice; Chanko, Nicholas; Trinh-Shevrin, Chau; Kwon, Simona
Alzheimer's Disease (AD) and Related Dementias (ADRD) are a growing concern across the globe. Unfortunately, racial/ethnic minorities in the United States (U.S.), such as Chinese Americans, have lower ADRD knowledge, and these individuals are less likely to be targeted and engaged in recommended dementia prevention and care. The objective of this study is to examine knowledge, attitudes, and beliefs about healthy aging and ADRD among older Chinese Americans living in New York City. Chinese Americans with very low English proficiency were recruited from a senior center in New York City. Accordingly, surveys were translated and focus groups were conducted in Mandarin or Cantonese. Questionnaires assessed demographic and health characteristics. Focus groups followed an open-ended protocol which was guided by the published literature. Focus group discussions were audio recorded, transcribed, and translated to English for qualitative analysis. Analysis of qualitative data proceeded according to the constant comparative method. A total of 18 participants were recruited. Average age of participants was 76.4Â years and participants were 72.2% female. The majority were married (72.2%). Participants reported chronic conditions, including diabetes (38.9%) and dyslipidemia (22.2%). Participants commonly reported that their health limited their ability to accomplish things (66.7%) and achieve things (66.7%). While 16.7% of participants reported no bodily pain, slight pain was reported by 44.4%, moderate pain by 33.3%, and extreme pain by 5.6%. Qualitative analysis revealed several prominent themes, including: (1) perceptions about normal aging; (2) fears about loneliness and cognitive decline; (3) understanding of healthy aging; (4) cultural influences on aging; and (5) perceptions of ADRD. Results from this study highlight a set of cultural beliefs about healthy aging as well as knowledge, attitudes, and beliefs pertaining to ADRD. These results may inform opportunities for increasing healthy aging practices and knowledge about dementia among underserved older Chinese Americans.
PMID: 35579786
ISSN: 1573-0719
CID: 5249202
Assessing changes in the food retail environment during the COVID-19 pandemic: opportunities, challenges, and lessons learned
Russo, Rienna G; Ali, Shahmir H; Mezzacca, Tamar Adjoian; Radee, Ashley; Chong, Stella; Kranick, Julie; Tsui, Felice; Foster, Victoria; Kwon, Simona C; Yi, Stella S
BACKGROUND:COVID-19 mitigation strategies have had an untold effect on food retail stores and restaurants. Early evidence from New York City (NYC) indicated that these strategies, among decreased travel from China and increased fears of viral transmission and xenophobia, were leading to mass closures of businesses in Manhattan's Chinatown. The constantly evolving COVID -19 crisis has caused research design and methodology to fundamentally shift, requiring adaptable strategies to address emerging and existing public health problems such as food security that may result from closures of food outlets. OBJECTIVE:We describe innovative approaches used to evaluate changes to the food retail environment amidst the constraints of the pandemic in an urban center heavily burdened by COVID-19. Included are challenges faced, lessons learned and future opportunities. METHODS:First, we identified six diverse neighborhoods in NYC: two lower-resourced, two higher-resourced, and two Chinese ethnic enclaves. We then developed a census of food outlets in these six neighborhoods using state and local licensing databases. To ascertain the status (open vs. closed) of outlets pre-pandemic, we employed a manual web-scraping technique. We used a similar method to determine the status of outlets during the pandemic. Two independent online sources were required to confirm the status of outlets. If two sources could not confirm the status, we conducted phone call checks and/or in-person visits. RESULTS:The final baseline database included 2585 food outlets across six neighborhoods. Ascertaining the status of food outlets was more difficult in lower-resourced neighborhoods and Chinese ethnic enclaves compared to higher-resourced areas. Higher-resourced neighborhoods required fewer phone call and in-person checks for both restaurants and food retailers than other neighborhoods. CONCLUSIONS:Our multi-step data collection approach maximized safety and efficiency while minimizing cost and resources. Challenges in remote data collection varied by neighborhood and may reflect the different resources or social capital of the communities; understanding neighborhood-specific constraints prior to data collection may streamline the process.
PMCID:9014275
PMID: 35436904
ISSN: 1471-2458
CID: 5202112
Chinese Americans' Use of Patient Portal Systems: Scoping Review
Lawrence, Katharine; Chong, Stella; Krelle, Holly; Roberts, Timothy; Thorpe, Lorna; Trinh-Shevrin, Chau; Yi, Stella; Kwon, Simona
BACKGROUND:Electronic patient portals are increasingly used in health care systems as communication and information-sharing tools and show promise in addressing health care access, quality, and outcomes. However, limited research exists on portal use patterns and practices among diverse patient populations, resulting in the lack of culturally and contextually tailored portal systems for these patients. OBJECTIVE:This study aimed to summarize existing evidence on the access and use patterns, barriers, and facilitators of patient portals among Chinese Americans, who represent a growing patient population in the United States with unique health care and health technology needs. METHODS:The authors conducted a literature search using the PRISMA Protocol for Scoping Reviews (Preferred Reporting Items for Systematic Reviews and Meta-Analyses-ScR) for extracting articles published in major databases (MEDLINE, Embase, and PsycINFO) on patient portals and Chinese Americans. Authors independently reviewed the papers during initial screening and full-text review. The studies were analyzed and coded for the study method type, sample population, and main outcomes of interest. RESULTS:In total, 17 articles were selected for inclusion in the review. The included articles were heterogenous and varied in their study aims, methodologies, sample populations, and outcomes. Major findings identified from the articles include variable patterns of portal access and use among Chinese Americans compared to other racial or ethnic groups, with limited evidence on the specific barriers and facilitators for this group; a preference for cross-sectional quantitative tools such as patient surveys and electronic health record-based data over qualitative or other methodologies; and a pattern of aggregating Chinese American-related data into a larger Asian or Asian American designation. CONCLUSIONS:There is limited research evaluating the use patterns, experiences, and needs of Chinese Americans who access and use patient portal systems. Existing research is heterogeneous, largely cross-sectional, and does not disaggregate Chinese Americans from larger Asian demographics. Future research should be devoted to the specific portal use patterns, preferences, and needs of Chinese Americans to help ensure contextually appropriate and acceptable design and implementation of these digital health tools.
PMCID:9015766
PMID: 35363153
ISSN: 2292-9495
CID: 5220062
Disaggregating Race/Ethnicity Data Categories: Criticisms, Dangers, And Opposing Viewpoints
Kader, Farah; Ðoàn, Lan N; Lee, Matthew; Chin, Matthew K; Kwon, Simona C; Yi, Stella S
ORIGINAL:0016238
ISSN: 1544-5208
CID: 5356752
Improving Asian American health during the Syndemic of COVID-19 and racism
Saw, Anne; Yi, Stella S; Ðoàn, Lan N; Tsoh, Janice Y; Yellow Horse, Aggie J; Kwon, Simona C; Samoa, Raynald; Aitaoto, Nia; Takeuchi, David T
PMCID:8881903
PMID: 35233516
ISSN: 2589-5370
CID: 5361862
The Mutually Reinforcing Cycle Of Poor Data Quality And Racialized Stereotypes That Shapes Asian American Health
Yi, Stella S; Kwon, Simona C; Suss, Rachel; Ðoàn, Lan N; John, Iyanrick; Islam, Nadia S; Trinh-Shevrin, Chau
The Asian American health narrative reflects a long history of structural racism in the US and the complex interplay of racialized history, immigrant patterns, and policies regarding Asians in the US. Yet owing to systematic issues in data collection including missing or misclassified data for Asian Americans and practices that lead to indiscriminate grouping of unlike individuals (for example, Chinese, Vietnamese, and Bangladeshi) together in data systems and pervasive stereotypes of Asian Americans, the drivers and experiences of health disparities experienced by these diverse groups remain unclear. The perpetual exclusion and misrepresentation of Asian American experiences in health research is exacerbated by three racialized stereotypes-the model minority, healthy immigrant effect, and perpetual foreigner-that fuel scientific and societal perceptions that Asian Americans do not experience health disparities. This codifies racist biases against the Asian American population in a mutually reinforcing cycle. In this article we describe the poor-quality data infrastructure and biases on the part of researchers and public health professionals, and we highlight examples from the health disparities literature. We provide recommendations on how to implement systems-level change and educational reform to infuse racial equity in future policy and practice for Asian American communities.
PMID: 35130076
ISSN: 1544-5208
CID: 5361892
Cancer resources and needs assessment of immigrant communities based in New York [Meeting Abstract]
Yusuf, Yousra; Foster, Victoria; Chebli, Perla; Sifuentes, Sonia; Trinh-Shevrin, Chau; Kwon, Simona
ISI:000788061800066
ISSN: 1055-9965
CID: 5275782
Community-driven recommendations for a culturally and contextually tailored HPV campaign for Arab and Mexican communities in Brooklyn [Meeting Abstract]
Chebli, Perla; Sifuentes, Sonia; Foster, Victoria; Yusuf, Yousra; Kazmi, Abiha; Idris, Sally; Trinh-Shevrin, Chau; Kwon, Simona
ISI:000788061800045
ISSN: 1055-9965
CID: 5275762
Social support, mental health, and vaccine willingness in Asian American older adults during the COVID-19 pandemic [Meeting Abstract]
Kokame, K A; Doan, L N; Saw, A; Yellow, Horse A J; Wu, B; Kwon, S C; Yi, S S
Background: Asian Americans have experienced increased mental health challenges since the onset of the COVID-19 pandemic. Substantial research documents the salubrious effects of social support on mental and overall health among Asian Americans. However, the role of social support in mental health and health behaviors like vaccine willingness for Asian American older adults during the pandemic remains underexplored despite the importance of social support for health and quality of life in this population.
Objective(s): This study examines the relationship between social support, mental health, and COVID-19 vaccine willingness among Asian American older adults during the pandemic.
Method(s): The Asian American, Native Hawaiian, and Pacific Islander COVID-19 Needs Assessment Survey was a national survey administered between January 18 - April 9, 2021 (n=3,736). Adults aged 50 years and older who self-identified as Asian American were included. Logistic regressions were conducted to analyze associations among depression symptoms, anxiety symptoms, COVID-19 vaccine willingness, and social support types (receiving or providing emotional and instrumental support).
Result(s): The sample (n=654) was 59% East Asian, 22% Southeast Asian, 10% South Asian, and 9% Multiethnic/Other. About 12.5% screened positive for depression symptoms, 16.7% for anxiety symptoms, 20.6% for depression or anxiety symptoms, and 75.2% were willing to get the COVID-19 vaccine. Compared to adults not receiving emotional support, adults who received emotional support were less likely to have depression [0.42 (0.25, 0.70)] and anxiety [0.56 (0.35, 0.90)], and they were more likely to get the COVID-19 vaccine [1.63 (1.00, 2.64)]. Adults who provided emotional support to others were also less likely to have depression [0.54 (0.31, 0.95)].
Conclusion(s): Receiving emotional support was not only associated with better mental health outcomes but also COVID-19 vaccine willingness. This may have implications for developing supportive programming for this population that not only includes instrumental or practical support, but also emotional support
EMBASE:637954204
ISSN: 1531-5487
CID: 5252452