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Alzheimer's Disease Screening Tools for Asian Americans: A Scoping Review
Lim, Sahnah; Chong, Stella; Min, Deborah; Mohaimin, Sadia; Roberts, Timothy; Trinh-Shevrin, Chau; Kwon, Simona C
With growing numbers of aging Asian Americans, Native Hawaiians, and Pacific Islanders (AANHPIs), the availability of culturally and linguistically appropriate screening tools for Alzheimer's disease and its related dementias (ADRD) is needed. The aim of this scoping review is to summarize the tools that have been adapted for and validated among the AANHPI population. Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) protocol for systematic reviews, six databases were searched for peer-reviewed articles describing ADRD among AANHPIs. Among 1,477 articles screened for inclusion, 15 articles were included in the final analysis. Results showed a paucity of studies that psychometrically validate tools among this population. Furthermore, studies that culturally adapted and/or translated existing tools mostly targeted East Asian American populations. Our review provides a first step in mapping the extant literature on ADRD screening tools for this underresearched population and will serve as a guide for future research, policy, and intervention.
PMID: 33100109
ISSN: 1552-4523
CID: 4647152
Applying a Population Health Equity Framework in the Clinical Setting-Incorporating Social and Behavioral Determinants of Health Into Estimations of Risk
Trinh-Shevrin, Chau
PMID: 33079193
ISSN: 2574-3805
CID: 4683912
Dietary policies and programs in the United States: A narrative review
Russo, Rienna; Li, Yan; Chong, Stella; Siscovick, David; Trinh-Shevrin, Chau; Yi, Stella
Prior reviews describing approach, methodological quality and effectiveness of dietary policies and programs may be limited in use for practitioners seeking to introduce innovative programming, or academic researchers hoping to understand and address gaps in the current literature. This review is novel, assessing the "where, who, and in whom" of dietary policies and programs research in the United States over the past decade - with results intended to serve as a practical guide and foundation for innovation. This study was conducted from October 2018 to March 2019. Papers were selected through a tailored search strategy on PubMed as well as citation searches, to identify grey literature. A total of 489 papers were relevant to our research objective. The largest proportion of papers described school-based strategies (31%) or included economic incentives (19%). In papers that specified demographics, the study populations most often included children, adults and adolescents (54%, 46%, and 42% respectively); and White, Black and Hispanic populations (77%, 76% and 70%, respectively). Results highlight opportunities for future research within workplace and faith-based settings, among racial/ethnic minorities, and older adults.
PMCID:7289763
PMID: 32551216
ISSN: 2211-3355
CID: 4489882
Chinese american pain experience (CAPE) project: A mixed-methods study to understand cancer-related pain management in Chinese American patients in new york city [Meeting Abstract]
Kwon, S; Wong, J; Rosenberg, A; Kelly, J; Tong, V; Chong, D; Cuff, G; Chen, Q; Trinh-Shevrin, C
Background: Chinese Americans make up the largest subgroup of the Asian American population in the US and are the largest Asian subset in New York City, where the population of Chinese Americans is 547,886; 72% are foreign-born, 34% lack a high school diploma, 61% have limited English proficiency (LEP), and 21% are living in poverty. Cancer is the leading cause of date among Chinese New Yorkers who suffer a disproportionately high burden for specific cancers, including nasopharyngeal, liver, and stomach cancer. Despite this cancer burden, Chinese Americans are at high risk for poorly controlled and managed pain in clinic and hospital settings and underrepresented in pain related research. The goal of the CAPE project is to understand the concepts of pain and pain experience and identify potential facilitators and barriers to pain treatment and satisfaction among limited-Englishproficient Chinese American inpatients treated at a New York City-based hospital.
Method(s): Kleinman's Patient's Explanatory Model of Illness and principles of social marketing served as guiding frameworks. In addition, a scoping review was conducted of electronic databases including PubMed, Google Scholar, and the gray literature on the pain management literature for Chinese American patients to further inform the interview topic guide and survey instrument. Key search terms included combinations of "Asian American,""Chinese," "Chinese American," "cancer," "pain," "pain management," and "pain experience." Chinese Americanpatients who requested services in Chinese language (e.g., Cantonese, Mandarin) will participate in a one-timequalitative interview and survey data collection. A sample of 25 participants will be recruited or until data saturationis achieved. All data collection will be conducted in the patients' preferred language. Analysis of the qualitative datawill utilize the techniques of narrative analysis and constant comparison analytic approach.
Result(s): The scoping review identified significant gaps in the extant literature. Findings highlighted the lack ofintervention or clinical trial studies to address pain and cancer-related pain management for Chinese Americanpatients despite data confirming high rates of dissatisfaction with pain management in clinic and hospital settings.Qualitative data will be assessed to identify themes related to factors to inform the development of strategies andprograms on optimal and cultural relevant pain management.
Conclusion(s): To improve quality of cancer care for Chinese American patients, study findings will inform thecultural adaption of hospital-based pain management programs and services and practice recommendations tofacilitate culturally relevant pain treatment for this vulnerable patient population
EMBASE:633451777
ISSN: 1055-9965
CID: 4694842
Addressing the burden of gastric cancer disparities in low-income New York City Chinese American immigrants [Meeting Abstract]
Kwon, S; Tan, Y -L; Pan, J; Zhao, Q; Williams, R; Chokshi, S; Mann, D; Singer, K; Hailu, B; Trinh-Shevrin, C
Background: Gastric cancer is the third most common cause of cancer death worldwide. In the US, gastric cancer incidence for Chinese Americans is nearly twice that for non-Hispanic whites. Cancer is the leading cause of death among Chinese New Yorkers who experience higher mortality for gastric cancer than other New Yorkers overall. The bacterium Helicobacter pylori (H. pylori) is the strongest risk factor for gastric cancer, and eradication of H. pylori through triple antibiotic therapy is the most effective prevention strategy for gastric cancer. Despite the elevated burden, there are no culturally and linguistically tailored evidence-based intervention strategies to address H. pylori medication adherence and gastric cancer prevention for Chinese Americans in NYC, a largely foreign-born (72%), limited English proficient (61%), and low-income (21% living in poverty) population.
Objective(s): The study objective was to develop and pilot a community health worker (CHW)-delivered linguistically and culturally adapted gastric cancer prevention intervention to improve H. pylori treatment adherence and address modifiable cancer prevention risk factors, including improved nutrition for low-income, LEP, Chinese American immigrants.
Method(s): We used a mixed methods and community-engaged research approach to develop and pilot the intervention curriculum and materials. Methods included: 1) a comprehensive scoping review of the peer-reviewed and grey literature on gastric cancer prevention programs and strategies targeting Chinese Americans; 2) 15 key informant interviews with gatekeepers and stakeholders serving the New York Chinese immigrant community to assess the knowledge and perception of H. pylori infection and gastric cancer among Chinese New Yorkers; and 3) pilot implementation of the collaboratively developed intervention with H. pylori-infected LEP Chinese immigrant participants (n=7).
Result(s): Study process findings and pilot results will be presented. Preliminary results indicate high patient- and community-level need and acceptability for the intervention. Baseline and 1-month post-treatment outcomes and survey data, qualitative data analysis of the CHW session notes, and key informant interviews will be presented.
Conclusion(s): Findings suggest that a CHW-delivered culturally adapted gastric cancer prevention intervention can result in meaningful health information and treatment adherence for at-risk, low-income Chinese immigrant communities. Study findings are being applied to inform a randomized controlled trial being implemented in safety net hospital settings
EMBASE:633451737
ISSN: 1055-9965
CID: 4694852
Using the Social Ecological Model to Identify Drivers of Nutrition Risk in Adult Day Settings Serving East Asian Older Adults
Sadarangani, Tina R; Johnson, Jordan J; Chong, Stella K; Brody, Abraham; Trinh-Shevrin, Chau
Adult day care (ADC) centers provide community-based care (including meals) to frail, ethnically diverse older adults, many of whom are at risk for malnutrition. To support the development of interventions to benefit ADC users, the authors aimed to identify barriers and facilitators of healthy nutrition among ADC users born in Vietnam and China. Semi-structured qualitative interviews were conducted among ADC stakeholders to identify barriers and facilitators. Data were analyzed using Braun and Clarke's six-step method and organized within the framework of the Social Ecological Model. Facilitators of good nutrition included adherence to traditional diet at the ADC center, peer networks, and access to ethnic grocers. Poor health, family dynamics, and loneliness all contributed to poor nutrition, as did the restrictive nature of nutrition programs serving ADC users in the United States. Individual, relationship, organizational, community, and policy level factors play a role in ADC users' nutritional status. Targeted nutrition interventions should leverage culturally congruent relationships between ADC users and staff and include advocacy for enhancement of federal programs to support this population. [Research in Gerontological Nursing, 13(3), 146-157.].
PMCID:7282494
PMID: 31834413
ISSN: 1938-2464
CID: 5079852
Qualitative analysis of the delivery of person-centered nutrition to asian americans with dementia in the adult day health care setting [Meeting Abstract]
Sadarangani, T; Chong, S; Park, S; Missaelides, L; Johnson, J J; Trinh-Shevrin, C; Brody, A
Adult day centers (ADSCs) provide community-based long-term care, including meals, to racially diverse older adults, 47% of whom have dementia and consequently experience elevated nutritional risk. We examine nutritional practices for Chinese and Vietnamese persons living with dementia (PLWD) in ADSCs, and evaluate the extent to which ADSC's provide person-centered nutritional care. Multi-stakeholder interviews were conducted. Data was coded using Dedoose and analyzed using Braun and Clarke's six-step method. The Model for the Provision of Good Nutritional Care in Dementia guided analysis. Barriers to food intake included distracting meal environment, rigid meal-times, and excessively restrictive diets. Conversely, peer relationships, culturally-tailored meals and celebrations, and consistent staff assisting with feeding benefitted PLWD. ADSCs can support healthy weight and quality of life among PLWD through personcentered nutritional care. To optimize nutritional services, further exploration is needed with respect to the ADSC environment, users' culture and ethnicity, and liberalized diets for PLWD
EMBASE:633776820
ISSN: 1532-5415
CID: 4756522
A Qualitative Analysis of the Delivery of Person-Centered Nutrition to Asian Americans With Dementia in the Adult Day Health Care Setting
Sadarangani, Tina; Chong, Stella; Park, Susie; Missaelides, Lydia; Johnson, Jordan; Trinh-Shevrin, Chau; Brody, Abraham
Adult day service centers (ADSCs) provide community-based long-term care, including meals, to racially diverse older adults, 47% of whom have dementia and consequently experience elevated nutritional risk. We examine nutritional behaviors for Chinese and Vietnamese persons living with dementia (PLWD) in ADSCs and evaluate the extent to which ADSCs provide person-centered nutritional care. Multi-stakeholder interviews were conducted. Data were coded using Dedoose and analyzed using Braun and Clarke's six-step method. The Model for the Provision of Good Nutritional Care in Dementia guided analysis. Barriers to food intake included distracting meal environment, rigid mealtimes, and excessively restrictive diets. Conversely, peer relationships, culturally tailored meals and celebrations, and consistent staff assisting with feeding benefited PLWD. ADSCs can support healthy nutritional behaviors and quality of life among PLWD through person-centered nutritional care. To optimize nutritional services, further exploration is needed with respect to the ADSC environment, users' culture and ethnicity, and liberalized diets for PLWD.
PMID: 32129126
ISSN: 1552-4523
CID: 4340702
Trends in Sociodemographic Disparities in Colorectal Cancer Staging and Survival: A SEER-Medicare Analysis
Liang, Peter S; Mayer, Jonathan D; Wakefield, Jon; Trinh-Shevrin, Chau; Kwon, Simona C; Sherman, Scott E; Ko, Cynthia W
INTRODUCTION/BACKGROUND:Race, ethnicity, and socioeconomic status are known to influence staging and survival in colorectal cancer (CRC). It is unclear how these relationships are affected by geographic factors and changes in insurance coverage for CRC screening. We examined the temporal trends in the association between sociodemographic and geographic factors and staging and survival among Medicare beneficiaries. METHODS:We identified patients 65 years or older with CRC using the 1991-2010 Surveillance, Epidemiology, and End Results-Medicare database and extracted area-level sociogeographic data. We constructed multinomial logistic regression models and the Cox proportional hazards models to assess factors associated with CRC stage and survival in 4 periods with evolving reimbursement and screening practices: (i) 1991-1997, (ii) 1998-June 2001, (iii) July 2001-2005, and (iv) 2006-2010. RESULTS:We observed 327,504 cases and 102,421 CRC deaths. Blacks were 24%-39% more likely to present with distant disease than whites. High-income areas had 7%-12% reduction in distant disease. Compared with whites, blacks had 16%-21% increased mortality, Asians had 32% lower mortality from 1991 to 1997 but only 13% lower mortality from 2006 to 2010, and Hispanics had 20% reduced mortality only from 1991 to 1997. High-education areas had 9%-12% lower mortality, and high-income areas had 5%-6% lower mortality after Medicare began coverage for screening colonoscopy. No consistent temporal trends were observed for the associations between geographic factors and CRC survival. DISCUSSION/CONCLUSIONS:Disparities in CRC staging and survival persisted over time for blacks and residents from areas of low socioeconomic status. Over time, staging and survival benefits have decreased for Asians and disappeared for Hispanics.
PMCID:7145046
PMID: 32352722
ISSN: 2155-384x
CID: 4438612
Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations
Sadarangani, Tina R; Salcedo, Vanessa; Chodosh, Joshua; Kwon, Simona; Trinh-Shevrin, Chau; Yi, Stella
Multiple studies show that racial and ethnic minorities with low socioeconomic status are diagnosed with Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD) in more advanced disease stages, receive fewer formal services, and have worse health outcomes. For primary care providers confronting this challenge, community-based organizations can be key partners in supporting earlier identification of AD/ADRD and earlier entry into treatment, especially for minority groups. The New York University Center for the Study of Asian American Health, set out to culturally adapt and translate The Kickstart-Assess-Evaluate-Refer (KAER) framework created by the Gerontological Society of America to support earlier detection of dementia in Asian American communities and assist in this community-clinical coordinated care. We found that CBOs play a vital role in dementia care, and are often the first point of contact for concerns around cognitive impairment in ethnically diverse communities. A major strength of these centers is that they provide culturally appropriate group education that focuses on whole group quality of life, rather than singling out any individual. They also offer holistic family-centered care and staff have a deep understanding of cultural and social issues that affect care, including family dynamics. For primary care providers confronting the challenge of delivering evidence-based dementia care in the context of the busy primary care settings, community-based organizations can be key partners in supporting earlier identification of AD/ADRD and earlier entry into treatment, especially for minority groups.
PMID: 32476553
ISSN: 2150-1327
CID: 4468552