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Utilizing Social Media to Identify Potential Living Donors: Learning from US Living Donor Programs
Nishio-Lucar, Angie G; Hunt, Heather F; Booker, Sarah E; Cartwright, Laura A; Larkin, Lindsay; Gonzalez, Stevan A; Spiers, Jessica A; Srinivas, Titte; Ahmad, Mahwish U; Levan, Macey L; Singh, Pooja; Wertin, Heather; McAdams, Cathy; Lentine, Krista L; Schaffer, Randolph
PURPOSE OF REVIEW/UNASSIGNED:Living donor transplantation provides the best possible recipient outcomes in solid organ transplantation. Yet, identifying potential living donors can be a laborious and resource intensive task that heavily relies on the recipient's means and social network. Social media has evolved to become a key tool in helping to bring recipients and potential living donors together given its ease of utilization, widespread access, and improved recipient's comfort with public solicitation. However, in the USA, formal guidelines to direct the use of social media in this context are lacking. RECENT FINDINGS/UNASSIGNED: = 125/174, 72%) indicated that their program provided education to use social media to identify potential living donors and most programs tracking referral source confirmed an increase utilization over time. The use of social media was compounded with program and recipient's challenges including concerns about privacy, inadequate technology access, and knowledge gaps. In this review, we discuss the results of this national survey and recent literature, and provide suggestions to inform program practices and guidance provided to patients wishing to use social media to identify potential living donors. SUMMARY/UNASSIGNED:Transplant programs should become competent in the use of social media for potential living donor identification to empower patients interested in using this tool. Social media education should be provided to all patients regardless of voiced interest and, when appropriate, revisited at multiple time points. Programs should consider developing a "team of experts" that can provide focused education and support to patients embarking in social media living donor campaigns. Care should be taken to avoid exacerbating disparities in access to living donor transplantation. Effective and timely guidance to patients in the use of social media could enhance the identification of potential living donors. SUPPLEMENTARY INFORMATION/UNASSIGNED:The online version contains supplementary material available at 10.1007/s40472-022-00382-1.
PMCID:9684893
PMID: 36466961
ISSN: 2196-3029
CID: 5480332
PSYCHOSOCIAL AND ETHICAL FACTORS AFFECTING PATIENTS' DECISION MAKING ABOUT UPPER EXTREMITY VASCULARIZED COMPOSITE ALLOTRANSPLANTATION [Meeting Abstract]
Gordon, Elisa J.; Kuramitsu, Brianna; Gacki-Smith, Jessica; Ferzola, Alexander; Vanterpool, Karen; Kunkle, Christina; Hewitt, Melissa; Schultheis, Andrea; Riggleman, Tiffany; Taylor, Jerika; Cooney, Carisa; Tintle, Scott; Brandacher, Gerald; Levan, Macey
ISI:000821187302238
ISSN: 1937-3341
CID: 5480642
A CONTENT ANALYSIS OF VIDEO-BASED EDUCATIONAL MATERIALS FOR LIVER TRANSPLANT PATIENTS THROUGH THE LENSES OF BOTH PEDAGOGY AND HEALTH EQUITY [Meeting Abstract]
Rajpal, Neha; Hamilton, James P.; Levan, Macey L.; Segev, Dorry L.; Strauss, Alexandra T.
ISI:000870796603205
ISSN: 0270-9139
CID: 5480652
Differential Immunogenicity of mRNA-1273 Versus BNT162b2 as a Third Vaccine Dose for Solid Organ Transplant Recipients Seronegative After Two BNT162b2 Doses. [Meeting Abstract]
Chang, Amy; Chiang, Teresa P. Y.; Alejo, Jennifer L.; Mitchell, Jonathan; Kim, Jake D.; Abedon, Aura T.; Avery, Robin K.; Tobian, Aaron A. R.; Massie, Allan B.; Levan, Macey L.; Warren, Daniel S.; Levan, Macey L.; Warren, Daniel S.; Garonzik-Wang, Jacqueline M.; Segev, Dorry L.; Werbel, William A.
ISI:000889117000006
ISSN: 0041-1337
CID: 5480662
Prediction of ESRD Risk in Living Kidney Donors Through Thirty Years Postdonation [Meeting Abstract]
Massie, Allan; Bendersky, Victoria A.; Snyder, Jon J.; Levan, Macey L.; Al-Ammary, Fawaz; Brennan, Daniel C.; Segev, Dorry L.
ISI:000889117000219
ISSN: 0041-1337
CID: 5480702
Patient Definitions of Transplant "Success" of Upper Extremity VCA [Meeting Abstract]
Downey, Max; Kuramitsu, Brianna; Gacki-Smith, Jessica; Vanterpool, Karen; Luken, Michelle; Nordstrom, Michelle; Riggleman, Tiffany; Fichter, Shannon; Cooney, Carisa; Levan, Macey; Tintle, Scott; Brandacher, Gerald; Jensen, Sally; Dumanian, Gregory; Gordon, Elisa
ISI:000889117001128
ISSN: 0041-1337
CID: 5480732
Response to a Pandemic: The Fall and Rise of Kidney Transplantation in the United States [Meeting Abstract]
Bisen, Shivani; Boyarsky, Brian; Werbel, William; Snyder, Jon; Zeiser, Laura B.; Garonzik-Wang, Jacqueline; Levan, Macey L.; Segev, Dorry L.; Massie, Allan B.
ISI:000889117000331
ISSN: 0041-1337
CID: 5480712
Antibody Response to a Third Dose of SARS-CoV-2 Vaccine in Heart and Lung Transplant Recipients [Meeting Abstract]
Alejo, Jennifer; Ruck, Jessica M.; Chiang, Teresa P. Y.; Massie, Allan B.; Abedon, Aura T.; Tobian, Aaron A. R.; Levan, Macey L.; Warren, Daniel S.; Garonzik-Wang, Jacqueline M.; Segev, Dorry L.; Werbel, William A.
ISI:000889117000105
ISSN: 0041-1337
CID: 5480672
Aftercare for Organ Donor Families: A Content Analysis of Organ Procurement Organization Family Services and Educational Materials [Meeting Abstract]
Sidoti, Carolyn; Akhtar, Jasmine; Klitenic, Samantha; Storch, Tara; Hughes, Elizabeth; Hagan, Caroline; Helman, Amber; Johnson, Ieesha; Vanterpool, Karen; Sung, Hannah; Zeiser, Laura; Levan, Macey
ISI:000889117000128
ISSN: 0041-1337
CID: 5480692
Ad.26.COV2.S Versus BNT162b2 or mRNA-1273 as a Third Dose in Solid Organ Transplant Recipients Seronegative After 2-dose mRNA Vaccination [Meeting Abstract]
Chiang, Teresa Po-Yu; Alejo, Jennifer L.; Mitchell, Jonathan; Kim, Jake D.; Abedon, Aura T.; Karaba, Andrew H.; Thomas, Letitia; Levan, Macey L.; Garonzik-Wang, Jacqueline M.; Avery, Robin K.; Pekosz, Andrew; Clarke, William A.; Warren, Daniel S.; Tobian, Aaron A. R.; Massie, Allan B.; Segev, Dorry L.; Werbel, William A.
ISI:000889117000108
ISSN: 0041-1337
CID: 5480682