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Informing the Design of Direct-to-Consumer Interactive Personal Genomics Reports

Shaer, Orit; Nov, Oded; Okerlund, Johanna; Balestra, Martina; Stowell, Elizabeth; Ascher, Laura; Bi, Joanna; Schlenker, Claire; Ball, Madeleine
BACKGROUND:In recent years, people who sought direct-to-consumer genetic testing services have been increasingly confronted with an unprecedented amount of personal genomic information, which influences their decisions, emotional state, and well-being. However, these users of direct-to-consumer genetic services, who vary in their education and interests, frequently have little relevant experience or tools for understanding, reasoning about, and interacting with their personal genomic data. Online interactive techniques can play a central role in making personal genomic data useful for these users. OBJECTIVE:We sought to (1) identify the needs of diverse users as they make sense of their personal genomic data, (2) consequently develop effective interactive visualizations of genomic trait data to address these users' needs, and (3) evaluate the effectiveness of the developed visualizations in facilitating comprehension. METHODS:The first two user studies, conducted with 63 volunteers in the Personal Genome Project and with 36 personal genomic users who participated in a design workshop, respectively, employed surveys and interviews to identify the needs and expectations of diverse users. Building on the two initial studies, the third study was conducted with 730 Amazon Mechanical Turk users and employed a controlled experimental design to examine the effectiveness of different design interventions on user comprehension. RESULTS:The first two studies identified searching, comparing, sharing, and organizing data as fundamental to users' understanding of personal genomic data. The third study demonstrated that interactive and visual design interventions could improve the understandability of personal genomic reports for consumers. In particular, results showed that a new interactive bubble chart visualization designed for the study resulted in the highest comprehension scores, as well as the highest perceived comprehension scores. These scores were significantly higher than scores received using the industry standard tabular reports currently used for communicating personal genomic information. CONCLUSIONS:Drawing on multiple research methods and populations, the findings of the studies reported in this paper offer deep understanding of users' needs and practices, and demonstrate that interactive online design interventions can improve the understandability of personal genomic reports for consumers. We discuss implications for designers and researchers.
PMCID:4526936
PMID: 26070951
ISSN: 1438-8871
CID: 4345682

Functional Roles and Career Paths in Wikipedia [Meeting Abstract]

Arazy, Ofer; Ortega, Felipe; Nov, Oded; Yeo, Lisa; Balila, Adam
ISI:000371990400092
ISSN: n/a
CID: 4346032

Informing and Improving Retirement Saving Performance using Behavioral Economics Theory-driven User Interfaces [Meeting Abstract]

Gunaratne, Junius; Nov, Oded
ISI:000412395500104
ISSN: 2159-6368
CID: 4346162

How Deceptive are Deceptive Visualizations?: An Empirical Analysis of Common Distortion Techniques [Meeting Abstract]

Pandey, Anshul Vikram; Rall, Katharina; Satterthwaite, Margaret L.; Nov, Oded; Bertini, Enrico
ISI:000412395501062
ISSN: 2159-6368
CID: 4346172

Brooklyn atlantis: A robotic platform for environmental monitoring with community participation

Chapter by: Laut, Jeffrey; Porfiri, Maurizio; Nov, Oded
in: International Conference of Control, Dynamic Systems, and Robotics by
[S.l.] : Avestia Publishinginfo@avestia.com, 2014
pp. ?-?
ISBN: 9781927877029
CID: 4347012

Gowanus voyage: Where mechatronics, public art, community members, and environmental science meet [focus on education]

Laut, Jeffrey; Wright, Sarah Nelson; Nov, Oded; Porfiri, Maurizio
The scientific literacy of the public contributes to the acceptance of new scientific concepts, technologies, and methods that may influence society as a whole [1]. Thus, increasing the public's awareness and knowledge in science, technology, engineering, and math (STEM) fields is not only essential for benefiting the economy in the long term [2]-[4] but also for improving society's capacity to make informed political decisions on pressing issues that are often rather convoluted [5]. To this end, mechatronicsbased outreach in informal settings has been shown to be an effective means to acquaint the public with established technical concepts and ongoing research questions [6]-[10]. © 2013 IEEE.
SCOPUS:84893397226
ISSN: 1066-033x
CID: 4346732

Scientists@Home: what drives the quantity and quality of online citizen science participation?

Nov, Oded; Arazy, Ofer; Anderson, David
Online citizen science offers a low-cost way to strengthen the infrastructure for scientific research and engage members of the public in science. As the sustainability of online citizen science projects depends on volunteers who contribute their skills, time, and energy, the objective of this study is to investigate effects of motivational factors on the quantity and quality of citizen scientists' contribution. Building on the social movement participation model, findings from a longitudinal empirical study in three different citizen science projects reveal that quantity of contribution is determined by collective motives, norm-oriented motives, reputation, and intrinsic motives. Contribution quality, on the other hand, is positively affected only by collective motives and reputation. We discuss implications for research on the motivation for participation in technology-mediated social participation and for the practice of citizen science.
PMCID:3972171
PMID: 24690612
ISSN: 1932-6203
CID: 4345662

The Persuasive Power of Data Visualization

Pandey, Anshul Vikram; Manivannan, Anjali; Nov, Oded; Satterthwaite, Margaret; Bertini, Enrico
Data visualization has been used extensively to inform users. However, little research has been done to examine the effects of data visualization in influencing users or in making a message more persuasive. In this study, we present experimental research to fill this gap and present an evidence-based analysis of persuasive visualization. We built on persuasion research from psychology and user interfaces literature in order to explore the persuasive effects of visualization. In this experimental study we define the circumstances under which data visualization can make a message more persuasive, propose hypotheses, and perform quantitative and qualitative analyses on studies conducted to test these hypotheses. We compare visual treatments with data presented through barcharts and linecharts on the one hand, treatments with data presented through tables on the other, and then evaluate their persuasiveness. The findings represent a first step in exploring the effectiveness of persuasive visualization.
PMID: 26356935
ISSN: 1941-0506
CID: 4345692

Development of a Mechatronics-Based Citizen Science Platform for Aquatic Environmental Monitoring

Laut, Jeffrey; Henry, Emiliano; Nov, Oded; Porfiri, Maurizio
ISI:000338107600007
ISSN: 1083-4435
CID: 4345982

INCREASING PATIENT ENGAGEMENT IN REHABILITATION THROUGH CITIZEN SCIENCE [Meeting Abstract]

Laut, Jeffrey; Cappa, Francesco; Nov, Oded; Porfiri, Maurizio
ISI:000361166800007
ISSN: 2151-1853
CID: 4346012