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Decreasing Agitation in Neurodiverse Patients with Mental Health Concerns

Yan, Diana Hou; Jeon, Avery; Ng, Yunfai; Rivera, Alexa; Donnelly, Lauren; Baker, Lorien; Zisu, Manuela P; Lim, Czer Anthoney
PURPOSE/OBJECTIVE:Children and adolescents are experiencing a mental health crisis. Neurodiverse patients have high rates of mental health conditions and worse outcomes. To address this disparity, the Autism Spectrum Disorder Care Pathway was applied to a pediatric emergency department (PED) and Observation Unit (OU) in order to decrease agitation experienced by these patients. METHODS:This prospective cohort study was in a community-based PED and OU from June 2023 to February 2024. A medical education curriculum consisting of a multidisciplinary champion training and toolkit rollout was completed. Agitation was measured by the Behavioral Activity Rating Scale. The primary aim was to decrease frequency of agitation experienced by neurodiverse patients at any point in the PED/OU. The secondary outcome was to decrease pharmacologic intervention and physical restraint use. RESULTS:We captured data from a total of 45 patients, with 19 baseline patients and 26 patients in the intervention group. At baseline, 9 out of 19 (47%) patients experienced agitation at some point in their PED/OU stay. After implementation of the curriculum, agitation levels decreased to 6 out of 26 (23%) patients (p = 0.04). Inter-rater reliability was 0.95. There were 3 incidences of pharmacologic intervention and no physical restraint use. CONCLUSIONS:This pilot medical education curriculum for PED and OU staff members decreased agitation in neurodiverse patients who presented for mental health complaints. This study is the foundation for expansion of the curriculum for use in general emergency departments.
PMID: 39699766
ISSN: 1573-3432
CID: 5764752

Changes in Attitudes and Knowledge after Trainings in a Clinical Care Pathway for Autism Spectrum Disorder

Donnelly, Lauren J; Cervantes, Paige E; Guo, Fei; Stein, Cheryl R; Okparaeke, Eugene; Kuriakose, Sarah; Filton, Beryl; Havens, Jennifer; Horwitz, Sarah M
Caring for individuals with autism spectrum disorder (ASD) can be complicated, especially when challenging behaviors are present. Providers may feel unprepared to work with these individuals because specialized training for medical and social service providers is limited. To increase access to specialized training, we modified an effective half-day ASD-Care Pathway training (Kuriakose et al. 2018) and disseminated it within five different settings. This short, focused training on strategies for preventing and reducing challenging behaviors of patients with ASD resulted in significant improvements in staff perceptions of challenging behaviors, increased comfort in working with the ASD population, and increased staff knowledge for evidence-informed practices. Implications, including the impact of sociodemographic characteristics on pre/post changes, and future directions are discussed.
PMID: 33201422
ISSN: 1573-3432
CID: 5086822

Staff Perceptions and Implementation Fidelity of an Autism Spectrum Disorder Care Pathway on a Child/Adolescent General Psychiatric Inpatient Service

Donnelly, Lauren J; Cervantes, Paige E; Okparaeke, Eugene; Stein, Cheryl R; Filton, Beryl; Kuriakose, Sarah; Havens, Jennifer; Horwitz, Sarah M
While youth with autism spectrum disorder (ASD) are psychiatrically hospitalized at high rates, general psychiatric settings are not designed to meet their unique needs. Previous evaluations of an ASD-Care Pathway (ASD-CP) on a general psychiatric unit revealed sustained reductions in crisis interventions (intramuscular medication use, holds/restraints; Cervantes et al. in J Autism Dev Disord 49(8):3173-3180, https://doi.org/10.1007/s10803-019-04029-6, 2019; Kuriakose et al. in J Autism Dev Disord 48(12):4082-4089, https://doi.org/10.1007/s10803-018-3666-y, 2018). The current study investigated staff perceptions of the ASD-CP (N = 30), and examined rates of ASD-CP implementation fidelity in relation to patient outcomes (N = 28). Staff identified visual communication aids and reward strategies as most helpful. The number of days of reward identification early in the inpatient stay was associated with fewer crisis interventions later in a patient's stay.
PMID: 32394312
ISSN: 1573-3432
CID: 4438022

Sustainability of a Care Pathway for Children and Adolescents with Autism Spectrum Disorder on an Inpatient Psychiatric Service

Cervantes, Paige; Kuriakose, Sarah; Donnelly, Lauren; Filton, Beryl; Marr, Mollie; Okparaeke, Eugene; Voorheis, Katherine; Havens, Jennifer; Horwitz, Sarah
Children with autism spectrum disorder (ASD) are frequently hospitalized within general psychiatric settings, which are not usually designed to meet their needs. An initial evaluation of a care pathway developed for youth with ASD receiving services in a general psychiatric inpatient unit (ASD-CP) showed promise in improving outcomes while using few resources (Kuriakose et al. in J Autism Dev Disord 48:4082-4089, 2018). As sustainability of inpatient psychiatric initiatives is imperative but rarely investigated, this study examined the stability of ASD-CP outcomes during an 18-month follow-up period (n = 15) compared to the 18-month initial evaluation (n = 20) and 18-month pre-implementation (n = 17) periods. Decreased use of crisis interventions, including holds/restraints and intramuscular medication use, was sustained in the 18 months after the initial implementation period. Implications and limitations are discussed.
PMID: 31065864
ISSN: 1573-3432
CID: 3908872

Definition and diagnosis

Chapter by: Cervantes, Paige; Shalev, Rebecca; Donnelly, Lauren
in: Handbook of intellectual disabilities: Integrating theory, research, and practice by Matson, Johnny L [Ed]
Cham, Switzerland: Springer Nature Switzerland AG; Switzerland, 2019
pp. 45-59
ISBN: 978-3-030-20842-4
CID: 5096642

How well do evidence-based universal parenting programs teach parents about psychological maltreatment?: a program review

Baker, Amy J L; Brassard, Marla R; Schneiderman, Mel S; Donnelly, Lauren J; Bahl, Anjam
OBJECTIVE: Psychological maltreatment (PM) is a widespread form of child maltreatment both in high-risk and maltreating families as well as in the general population of parents, yet there are no intervention programs that target it directly. The current study was designed as the first step in a larger program of research concerning educating parents about PM. In this study we evaluated the content of universal parenting programs to assess whether they include content on PM. Three questions were addressed: (1) Which types, if any, of PM were included in the content of these programs? (2) Which programs, if any, have content about each of the types of PM? (3) What are the implications for the development of PM curricula for parents? METHOD: Ten evidence-based, manualized, universal parenting programs identified from SAMHSA or a comparable model program registry were rated on how well their content covered 18 types of psychological maltreatment (PM), as defined by the American Professional Society on the Abuse of Children, APSAC (Bingelli, Hart, & Brassard, 2001; Hart & Brassard, 1995). Each type of PM was coded along several dimensions which resulted in two summary scores: (1) Does the program contain content designed to teach parents what not to do in regards to the 18 psychologically maltreating behaviors and (2) Does the program contain content designed to teach parents what to do instead? RESULTS: Content related to most PM types were not included in the curricula, especially regarding "what not to do" and not one program was rated as having content related to teaching all 18 types of PM. CONCLUSIONS: Existing parenting programs do not currently cover content for teaching community parents about psychological maltreatment.
PMID: 22015204
ISSN: 1873-7757
CID: 2690412