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Adapting a pain coping skills training intervention for people with chronic pain receiving maintenance hemodialysis for end stage Kidney disease
Steel, Jennifer L; Brintz, Carrie E; Heapy, Alicia A; Keefe, Francis; Cheatle, Martin D; Jhamb, Manisha; McNeil, Daniel W; Shallcross, Amanda J; Kimmel, Paul L; Dember, Laura M; White, David M; Williams, Joey; Cukor, Daniel
Pain Coping Skills Training (PCST) is a first-line cognitive-behavioral, non-pharmacological treatment for chronic pain and comorbid symptoms. PCST has been shown to be effective in racially and ethnically diverse cohorts across several chronic medical conditions. However, PCST has not been evaluated in those with end stage kidney disease (ESKD) receiving in-center maintenance hemodialysis. Due to the high rates of morbidity associated with ESKD, and time-intensive treatment, an adaptation of PCST was warranted to address the unique challenges experienced by people living with ESKD. Using current guidelines developed by Card and colleagues for intervention adaptation, PCST was adapted so that it could be implemented among people living with ESKD in a national multisite trial. The objective of this paper was to describe the adaption process outlined by Card and colleagues including how the team selected an effective intervention to adapt, developed a program model, identified mismatches in the original intervention and study population, and then adapted the intervention for those with ESKD treated with in-center maintenance hemodialysis. Finally, we briefly describe future directions for clinical practice and research with the adapted PCST intervention for those with ESKD.Trial registration: ClinicalTrials.gov #NCT04571619.
PMID: 39627496
ISSN: 1573-3521
CID: 5804422
Brief Mindfulness-Based Cognitive Therapy in Women With Myocardial Infarction: Results of a Multicenter Randomized Controlled Trial
Spruill, Tanya M; Park, Chorong; Kalinowski, Jolaade; Arabadjian, Milla E; Xia, Yuhe; Shallcross, Amanda J; Visvanathan, Pallavi; Smilowitz, Nathaniel R; Hausvater, Anaïs; Bangalore, Sripal; Zhong, Hua; Park, Ki; Mehta, Puja K; Thomas, Dwithiya K; Trost, Jeffrey; Bainey, Kevin R; Heydari, Bobak; Wei, Janet; Dickson, Victoria Vaughan; Ogedegbe, Gbenga; Berger, Jeffrey S; Hochman, Judith S; Reynolds, Harmony R
BACKGROUND/UNASSIGNED:Elevated perceived stress is associated with adverse outcomes following myocardial infarction (MI) and may account for poorer recovery among women vs men. OBJECTIVES/UNASSIGNED:This randomized controlled trial tested effects of a mindfulness-based intervention on stress levels among women with MI. METHODS/UNASSIGNED:Women with elevated stress (Perceived Stress Scale [PSS-4]≥6) at least 2 months after MI were enrolled from 12 hospitals in the United States and Canada and via community advertising. Participants were randomized to a remotely delivered mindfulness intervention (MBCT-Brief) or heart disease education, both 8 weeks long. Follow-up was 6 months. Changes in stress (PSS-10; primary outcome) and secondary outcomes (depressive symptoms, anxiety, quality of life, disease-specific health status, actigraphy-assessed sleep) were compared between groups. RESULTS/UNASSIGNED: = 0.036). CONCLUSIONS/UNASSIGNED:MBCT-Brief was associated with greater 6-month reductions in stress than an active control among adherent participants. More frequent mindfulness practice was associated with greater improvements in psychological outcomes. Strategies to engage women with MI in mindfulness training and support regular home practice may enhance these effects.
PMCID:11786073
PMID: 39898341
ISSN: 2772-963x
CID: 5783692
Feasibility, acceptability, and fidelity of remote-delivered abbreviated mindfulness-based cognitive therapy interventions for patients with migraine and depressive symptoms
Seng, Elizabeth K; Hill, Jacob; Reeder, Annie Kate; Visvanathan, Pallavi; Wells, Rebecca E; Lipton, Richard B; Minen, Mia; Shallcross, Amanda J
OBJECTIVE:This study was an open-label single-arm clinical trial evaluating the fidelity, feasibility, acceptability, and clinical signal of abbreviated mindfulness-based cognitive therapy (MBCT-brief) delivered either via telephone (MBCT-T) or by video conferencing (MBCT-V) for people with migraine and comorbid depressive symptoms. BACKGROUND:Migraine is commonly comorbid with elevated depressive symptoms. MBCT reduces depressive symptoms and shows promise to reduce migraine-related disability. An abbreviated and remotely delivered version of MBCT could increase access to care. METHODS:) at baseline, mid-treatment, and post-treatment. Feasibility and acceptability rates were compared to a priori benchmarks. RESULTS:(pre-treatment median [interquartile range] score 8 [5, 13] vs. post-treatment 4 [3, 6], p = 0.003). CONCLUSION/CONCLUSIONS:We found that remotely delivered MBCT-brief for migraine and depressive symptoms was feasible and acceptable to patients in both the telephone and video modalities. Intervention was associated with significant post-treatment reductions in headache-related disability and depressive symptomatology, findings that must be interpreted cautiously in the absence of a control group.
PMID: 39400343
ISSN: 1526-4610
CID: 5718352
Characterizing Mental Health Status and Service Utilization in Chinese Americans With Type 2 Diabetes in New York City: Cross-Sectional Study
Shi, Yun; Wu, Bei; Islam, Nadia; Sevick, Mary Ann; Shallcross, Amanda J; Levy, Natalie; Tamura, Kosuke; Bao, Han; Lieu, Ricki; Xu, Xinyi; Jiang, Yulin; Hu, Lu
BACKGROUND:Emerging evidence indicates that individuals with type 2 diabetes (T2D) are more prone to mental health issues than the general population; however, there is a significant lack of data concerning the mental health burden in Chinese Americans with T2D. OBJECTIVE:The aim of this study was to explore the comorbid mental health status, health-seeking behaviors, and mental service utilization among Chinese Americans with T2D. METHODS:A cross-sectional telephone survey was performed among 74 Chinese Americans with T2D in New York City. We used standardized questionnaires to assess mental health status and to gather data on mental health-seeking behaviors and service utilization. Descriptive statistics were applied for data analysis. RESULTS:A total of 74 Chinese Americans with T2D completed the survey. Most participants (mean age 56, SD 10 years) identified as female (42/74, 57%), were born outside the United States (73/74, 99%), and had limited English proficiency (71/74, 96%). Despite nearly half of the participants (34/74, 46%) reporting at least one mental health concern (elevated stress, depressive symptoms, and/or anxiety), only 3% (2/74) were currently using mental health services. Common reasons for not seeking care included no perceived need, lack of information about Chinese-speaking providers, cost, and time constraints. The cultural and language competence of the provider was ranked as the top factor related to seeking mental health care. CONCLUSIONS:Chinese Americans with T2D experience relatively high comorbid mental health concerns yet have low service utilization. Clinicians may consider team-based care to incorporate mental health screening and identify strategies to provide culturally and linguistically concordant mental health services to engage Chinese Americans with T2D.
PMID: 38954806
ISSN: 2561-326x
CID: 5674322
Emotional responses to a global stressor: Average patterns and individual differences
Willroth, Emily C.; Smith, Angela M.; Graham, Eileen K.; Mroczek, Daniel K.; Shallcross, Amanda J.; Ford, Brett Q.
Major stressors often challenge emotional well-being"”increasing negative emotions and decreasing positive emotions. But how long do these emotional hits last? Prior theory and research contain conflicting views. Some research suggests that most individuals"™ emotional well-being will return to, or even surpass, baseline levels relatively quickly. Others have challenged this view, arguing that this type of resilient response is uncommon. The present research provides a strong test of resilience theory by examining emotional trajectories over the first 6 months of the COVID-19 pandemic. In two pre-registered longitudinal studies (total N =1147), we examined average emotional trajectories and predictors of individual differences in emotional trajectories across 13 waves of data from February through September 2020. The pandemic had immediate detrimental effects on average emotional well-being. Across the next 6 months, average negative emotions returned to baseline levels with the greatest improvements occurring almost immediately. Yet, positive emotions remained depleted relative to baseline levels, illustrating the limits of typical resilience. Individuals differed substantially around these average emotional trajectories and these individual differences were predicted by socio-demographic characteristics and stressor exposure. We discuss theoretical implications of these findings that we hope will contribute to more nuanced approaches to studying, understanding, and improving emotional well-being following major stressors.
SCOPUS:85163652951
ISSN: 0890-2070
CID: 5548592
Psychological Resilience: An Affect-Regulation Framework
Troy, Allison S; Willroth, Emily C; Shallcross, Amanda J; Giuliani, Nicole R; Gross, James J; Mauss, Iris B
Exposure to adversity (e.g., poverty, bereavement) is a robust predictor of disruptions in psychological functioning. However, people vary greatly in their responses to adversity; some experience severe long-term disruptions, others experience minimal disruptions or even improvements. We refer to the latter outcomes-faring better than expected given adversity-as psychological resilience. Understanding what processes explain resilience has critical theoretical and practical implications. Yet, psychology's understanding of resilience is incomplete, for two reasons: (a) We lack conceptual clarity, and (b) two major approaches to resilience-the stress and coping approach and the emotion and emotion-regulation approach-have limitations and are relatively isolated from one another. To address these two obstacles, we first discuss conceptual questions about resilience. Next, we offer an integrative affect-regulation framework that capitalizes on complementary strengths of both approaches. This framework advances our understanding of resilience by integrating existing findings, highlighting gaps in knowledge, and guiding future research. Expected final online publication date for the Annual Review of Psychology, Volume 74 is January 2023. Please see http://www.annualreviews.org/page/journal/pubdates for revised estimates.
PMID: 36103999
ISSN: 1545-2085
CID: 5336272
Measuring Mindfulness in Black Americans: A Psychometric Validation of the Five Facet Mindfulness Questionnaire
Okafor, Gold N.; Ford, Brett Q.; Antonoplis, Stephen; Reina, Anita M.; Lutfeali, Samina; Shallcross, Amanda J.
Objectives: Black Americans disproportionately experience higher levels of chronic stress. Mindfulness is a promising, cost-effective option for reducing stress and related mental health outcomes, such as depression and anxiety. The Five Facet Mindfulness Questionnaire (FFMQ) is one of the most widely used tools to measure mindfulness; however, Black American samples have been underrepresented in validation studies of the FFMQ. Consequently, the validity of the FFMQ within Black Americans has received minimal attention. The present study assessed the psychometric properties and nomological network of the original 39-item FFMQ (FFMQ-39) and the short form 15-item FFMQ (FFMQ-15) among a non-clinical, Black American sample in the United States. Method: In a longitudinal study, 586 Black Americans completed either the FFMQ-39 or the FFMQ-15 at two time points one month apart, as well as measures of the constructs in mindfulness"™ nomological network and demographic attributes. Results: Exploratory and confirmatory factor analyses supported a 5-factor structure in both questionnaires. Both questionnaires had good fit indices (RMSEA < 0.06, SRMR < 0.08, CFI > 0.92, TFI > 0.92) and demonstrated strong test"“retest reliability, expected associations with nomological network variables, and invariance across ethnic heritage, ethnic identity, everyday discrimination, lifetime discrimination, skin tone, depression level, gender, mindfulness meditation experience, and household income. Conclusions: The results indicate that both the FFMQ-39 and the FFMQ-15 can validly and reliably measure mindfulness in a non-clinical, Black American sample. These findings contribute to cultural generalizability and mindfulness assessment within underrepresented populations. Preregistration: The analytic plan was pre-registered on the Open Science Framework. Registration: https://osf.io/95v4m.
SCOPUS:85147778684
ISSN: 1868-8527
CID: 5425142
An Open Trial of Telephone-Delivered Mindfulness-Based Cognitive Therapy: Feasibility, Acceptability, and Preliminary Efficacy for Reducing Depressive Symptoms
Shallcross, Amanda J; Duberstein, Zoe T; Sperber, Sarah H; Visvanathan, Pallavi D; Lutfeali, Samina; Lu, Nathaniel; Carmody, James; Spruill, Tanya M
Mindfulness-based cognitive therapy (MBCT) is a promising intervention for reducing depressive symptoms in individuals with comorbid chronic disease, but the program's attendance demands make it inaccessible to many who might benefit. We tested the feasibility, acceptability, safety, and preliminary efficacy of an abbreviated, telephone-delivered adaptation of the in-person mindfulness-based cognitive therapy (MBCT-T) program in a sample of patients with depressive symptoms and hypertension. Participants (n = 14; 78.6% female, mean age = 60.6) with mild to moderate depressive symptoms and hypertension participated in the 8-week MBCT-T program. Feasibility was indexed via session attendance and home-based practice completion. Acceptability was indexed via self-reported satisfaction scores. Safety was assessed via reports of symptomatic decline or need for additional mental health treatment. Depressive symptoms (Quick Inventory of Depressive Symptomatology-Self-Report [QIDS-SR]) and anxiety (Hospital Anxiety and Depression Scale-Anxiety subscale; HADS-A) were assessed at baseline and immediately following the intervention. Sixty-four percent of participants (n = 9) attended ≥4 intervention sessions. Seventy-one percent (n = 6) of participants reported completing all assigned formal home practice and 89.2% (n = 8) reported completing all assigned informal practice. Participants were either very satisfied (75%; n = 6) or mostly satisfied (25%; n = 2) with the intervention. There were no adverse events or additional need for mental health treatment. Depressive symptom scores were 4.09 points lower postintervention (p = .004). Anxiety scores were 3.18 points lower postintervention (p = .039). Results support the feasibility, acceptability, safety, and preliminary efficacy of an abbreviated, telephone-delivered version of MBCT for reducing depressive and anxiety symptoms in individuals with co-occurring chronic disease.
PMCID:9328416
PMID: 35903539
ISSN: 1077-7229
CID: 5386782
Emergency provider perspectives on facilitators and barriers to home and community services for older adults with serious life limiting illness: A qualitative study
Hill, Jacob D; De Forcrand, Claire; Cuthel, Allison M; Adeyemi, Oluwaseun John; Shallcross, Amanda J; Grudzen, Corita R
BACKGROUND:Older adults account for a large proportion of emergency department visits, but those with serious life-limiting illness may benefit most from referral to home and community services instead of hospitalization. We aim to document emergency provider perspectives on facilitators and barriers to accessing home and community services for older adults with serious life-limiting illness. METHODS:We conducted interviewer-administered semi-structured interviews with emergency providers from health systems across the United States to obtain provider perspectives on facilitators and barriers to accessing home and community services. We completed qualitative thematic analysis using an iterative process to develop themes and subthemes to summarize provider responses. RESULTS:We interviewed 8 emergency nurses and 10 emergency physicians across 11 health systems. Emergency providers were familiar with local home and community services. Facilitators to accessing these services include care management and social workers. Barriers include services that are not accessible full-time to receive referrals, insurance/payment, and the busy nature of the emergency department. The most helpful reported services were hospice, physical therapy, occupational therapy, and visiting nursing services. Home-based palliative care and full-time emergency department-based care management and social work were the services most desired by providers. Providers expressed support for improving access to home and community services in the hopes of decreasing unnecessary emergency visits and inpatient admissions, and to provide patients with greater options for supportive care. CONCLUSION/CONCLUSIONS:Obtaining the perspective of emergency providers highlights important considerations to accessing HCS for older-adults with serious life-limiting illness from the emergency department. This study provides foundational information for futures studies and initiatives for improving access to home and community services directly from the emergency department.
PMCID:9355176
PMID: 35930579
ISSN: 1932-6203
CID: 5286392
Patient Activation Measure in Dialysis Dependent Patients in the United States
Cukor, Daniel; Zelnick, Leila; Charytan, David; Shallcross, Amanda; Mehrotra, Rajnish
PMCID:8638382
PMID: 34470829
ISSN: 1533-3450
CID: 5086892