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Feasibility of a Self-directed Upper Extremity Training Program to Promote Actual Arm Use for Individuals Living in the Community With Chronic Stroke

Kim, Grace J; Gahlot, Amanda; Magsombol, Camile; Waskiewicz, Margaret; Capasso, Nettie; Van Lew, Stephen; Kim, Hayejin; Parnandi, Avinash; Dickson, Victoria Vaughan; Goverover, Yael
OBJECTIVE/UNASSIGNED:To determine the feasibility of a self-directed training protocol to promote actual arm use in everyday life. The secondary aim was to explore the initial efficacy on upper extremity (UE) outcome measures. DESIGN/UNASSIGNED:Feasibility study using multiple methods. SETTING/UNASSIGNED:Home and outpatient research lab. PARTICIPANTS/UNASSIGNED:Fifteen adults (6 women, 9 men, mean age=53.08 years) with chronic stroke living in the community. There was wide range of UE functional levels, ranging from dependent stabilizer (limited function) to functional assist (high function). INTERVENTION/UNASSIGNED:Use My Arm-Remote protocol. Phase 1 consisted of clinician training on motivational interviewing (MI). Phase 2 consisted of MI sessions with participants to determine participant generated goals, training activities, and training schedules. Phase 3 consisted of UE task-oriented training (60 minutes/day, 5 days/week, for 4 weeks). Participants received daily surveys through an app to monitor arm training behavior and weekly virtual check-ins with clinicians to problem-solve challenges and adjust treatment plans. OUTCOME MEASURES/UNASSIGNED:Primary outcome measures were feasibility domains after intervention, measured by quantitative study data and qualitative semi-structured interviews. Secondary outcomes included the Canadian Occupational Performance Measure (COPM), Motor Activity Log (MAL), Fugl-Meyer Assessment (FMA), and accelerometry-based duration of use metric measured at baseline, discharge, and 4-week follow-up. RESULTS/UNASSIGNED:<.001). CONCLUSION/UNASSIGNED:The UMA-R was feasible and safe to implement for individuals living in the community with chronic stroke. Adherence duration was identified as area of refinement. Participants demonstrated improvements in standardized UE outcomes to support initial efficacy of the UMA-R. Shared decision-making and behavior change frameworks can support the implementation of UE self-directed rehabilitation. Our results warrant the refinement and further testing of the UMA-R.
PMCID:10928291
PMID: 38482107
ISSN: 2590-1095
CID: 5737782

Protocol for a remote home-based upper extremity self-training program for community-dwelling individuals after stroke

Kim, Grace J; Gahlot, Amanda; Magsombol, Camille; Waskiewicz, Margaret; Capasso, Nettie; Van Lew, Steve; Goverover, Yael; Dickson, Victoria V
BACKGROUND/UNASSIGNED:Half of all stroke survivors experience hemiparesis on the contralateral side, resulting in chronic upper extremity (UE) impairment. Remote rehabilitation is a promising approach to optimize the gains made in the clinic to maximize function and promote UE use at home. This paper describes the study protocol for a remote home-based UE self-training program. DESIGN/UNASSIGNED:This was a feasibility study that used a convergent mixed methods approach. METHODS/UNASSIGNED:We collected data on 15 community-dwelling individuals with UE hemiparesis after stroke. The study used motivational interviewing (MI) and ecological momentary assessments (EMA) to maximize engagement in a 4-week personalized UE self-training program. The study consisted of three phases: 1) training in MI for the interventionists 2) creating customized treatment plans using shared decision making, and 3) four weeks of UE self-training. MEASURES AND ANALYSIS/UNASSIGNED:To evaluate feasibility, we will summarize recruitment and retention rates, intervention delivery, acceptance, adherence, and safety. Quantitative UE outcomes will measure change in UE status after the intervention (Fugl-Meyer Assessment, Motor Activity Log, Canadian Occupational Performance Measure, and bilateral magnitude ratio). Qualitative data (1:1 semi-structured interviews) will capture participants' perceptions and experience with the intervention. Quantitative and qualitative data will be integrated to gain a deeper understanding of the facilitators and barriers for engagement and adherence to UE self-training. CONCLUSION/UNASSIGNED:The results of this study will advance the scientific knowledge for use of MI and EMA as methods for enhancing adherence and engagement in UE self-training in stroke rehabilitation. The ultimate impact of this research will be to improve UE recovery for individuals with stroke transitioning back into community. CLINICAL TRIALS REGISTRATION/UNASSIGNED:NCT05032638.
PMCID:10126840
PMID: 37113325
ISSN: 2451-8654
CID: 5465512